Families affected by rare craniofacial conditions often face significant challenges, including social isolation, stigma, bullying, and complex medical journeys. Many families report that they have never met another person with the same condition. This isolation can have a profound impact on emotional wellbeing, confidence, and resilience.
The donation will be used to towards our Annual Family Weekend, the only national residential event in the UK for children and families affected by rare craniofacial conditions. Held each summer, it brings together families from across the country for a weekend of connection, emotional support – and fun.
The event includes:
- Peer support for parents and carers
- Confidence building activities for children and young people
- Sessions for siblings and dads
- Social activities that promote inclusion and belonging
- Travel bursaries for low income families.
For many attendees, this is the only opportunity all year to meet another family with similar experiences. The grant from Movement for Good will enable us to continue delivering this unique, life changing event for families who often have nowhere else to turn.
