Reverse Rett is a small, rare disease charity founded by parents of children with Rett syndrome. Our aim is to drive treatments and a cure for Rett syndrome into the lives of everyone affected. The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway. Much is required of our small, rare disease organisation at this time and the donation from the Benefact Group will enable us to carry on with the research projects we support.
Reverse Rett works with doctors, researchers and industry partners to help bring about much treatments for Rett syndrome. Over the last fourteen years, we’ve invested in high-quality research projects such as the RSRT Gene Therapy and MECP2 Consortia, which have led to the gene therapy programs in clinical trials today.
We provide online workshops and up-to-date information via our website, social media platforms and one to one contact with families. Clinical trials of gene therapy have just been approved by the UK regulatory authorities. We need your help to continue our work to bring more clinical trials to the UK and to prepare for upcoming NHS Health Technology Assessments.
This grant will help us continue with this vital work.
Andy Stevenson, Founder, Reverse Rett
You can nominate this charity to win £1,000 with Movement for Good
